Wednesday, 6 March 2024

The Gender Pain Gap and The Campaign Against Painful Hysteroscopy (CAPH)

I was diagnosed with womb cancer in 2010 following a chest x-ray, a trans-vaginal ultrasound scan and, later, a hysteroscopy under general anaesthetic during which (what turned out to be) a grade 3 endometrial tumour was removed and sent to histology for analysis. Luckily for me, the cancer was early stage.

Aside from fingertip bruises around my right lower leg, a weird vibrating sensation in my right ankle - much like a mobile 'phone going off - and my legs feeling like rubber whenever I walked, there was little else to suggest the trauma my body had gone through whilst unconscious. I was only too glad not to have been awake for the hysteroscopy and endometrial biopsy experience.

Many other women are far from that lucky.

The Campaign Against Painful Hysteroscopy (hysteroscopyaction.org.uk)
 has collected over 5000 horror stories from women subjected to hysteroscopy in an outpatient setting, often without fully informed consent or adequate - if any - pain relief. 

A spokesperson for the campaign explained:

'Our grassroots community group has been campaigning for several years to gain women the option of safely monitored IV Procedural Sedation Analgesia for outpatient hysteroscopy (OPH / womb endoscopy) already routinely offered to all-gender NHS endoscopy patients, e.g., for colonoscopy.

Ten years ago the stat for severe pain during OPH was 1 in 4, now it's 1 in 3. The NHS Getting It Right First Time (GIRFT) programme has set a target of 90% diagnostic hysteroscopies to be carried out in outpatients without sedation - a money saving decision. This 90% figure is based on the recommendation of ONE gynaecologist, a member of the British Association of Day Surgeons.

CAPH is aware that, as a result of this policy, some women are too traumatised to return to gynae clinics for important cancer checks - hysteroscopy is currently the main diagnostic tool for confirming the presence of womb cancer, meaning some women are dagnosed late.

It's scandalous and heartbreaking and urgently needs to change.'


If you're due to attend for a hysteroscopy and aren't sure what the procedure entails, or what your rights are regarding pain relief, you can find CAPH as follows:

https://www.facebook.com/HysteroscopyA/

@HysteroscopyA

@campaign_painful_hysteroscopy


Rose x



Friday, 17 June 2022

Target Ovarian Cancer Need Our Help

 Hi all,

I know I usually write about womb cancer related "stuff" but today I have a favour to ask around ovarian cancer. 

Womb cancer and ovarian cancer are two different cancers and the prognosis for ovarian cancer is very often much worse than for womb cancer.

The charity Target Ovarian Cancer is currently asking people in the UK to sign an open letter, calling on UK governments to take action to end the awareness crisis in ovarian cancer.

You can add your signature to the letter via the following link:

https://campaign.targetovariancancer.org.uk/page/97923/petition/1


The more people across England, Wales, Scotland and Northern Ireland who sign this letter, the harder it will be for decision makers to ignore it.

I've already added my signature. Please join me by adding yours too.


Love and thanks,

Rose x



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Sunday, 5 December 2021

Hi Everyone!

Here we are on a very dull, grey, Winter's afternoon in the UK.

It's been a fair while since I last wrote a post of any kind for this blog - my last two posts have been the Data Protection Notice from Google so that you all know what you're getting into when you read blogs hosted via the blogger.com site! And that's because it's a legal requirement that you're told. You'll probably see the notice pop up anyway whenever you read posts on this blog, but I've shared it just in case you don't. 

I'm not even sure this is the most up-to-date site for blogs on Google any more! But, hey, this is the blog site I have so this is the blog site I'll use from time-to-time. At least for now. (She says, having not written anything at all for several years...)

I only came on today to say hi this time around. We're heading towards Christmas again here in the UK - this year (ditto last year) seems to have passed very quickly. And, as I'm pretty sure you all know - unless you've been in deep outer space for the last couple of years, with no means of communicating with Earth - the world is still being dominated by Covid-19 and its various mutations. Although, if non-Covid headlines are anything to go by, there are various human beings apparently hell bent on world domination too. 

I gave up buying newspapers and watching TV news several years back - it makes for a much happier mindset, not to mention life in general!

So, on that note, as I've said hi, I'll leave this ramble here for today.

Love to anyone still out there who reads this blog!

Love Rose x



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Data Protection Notice

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Friday, 28 September 2018

Data Protection Notice

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Sunday, 31 December 2017

Happy New Year!

We're around ninety minutes into 2018 here in the UK and I hope you've all had a good start to this new year. Wherever you are in the world, may 2018 be happy for you.

Love Rose x



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Tuesday, 19 December 2017

Christmas: The Dreaded C Word?

So here we are in December and hurtling rapidly towards Christmas Day which is now less than a week away.

Christmas can be a difficult time of year for many, triggering feelings of loneliness and loss; and it's not only cancer patients who might struggle during the festive season. Anyone who is grieving the loss of a loved one, experiencing a relationship break up or going through any serious illness, can find this time of year exhausting and overwhelming.

Sometimes it's the opposite of loneliness that worries us at this time of year. Do you dread the annual visit of that one relative who finds fault with whatever you do no matter how hard you try? Or does sibling rivalry rear its ugly head when you're cooped up with your loved ones for hours on end?

Maybe your Christmas concerns are altogether different. Perhaps you spend the time worrying because you've maxed out your credit card trying to make sure everyone has a good time, but you wonder how you'll pay off the bills at the end of it all.

There's no doubt that Christmas can be an incredibly challenging time of year for many, while others approach it with good humour. Only yesterday my yoga instructor commented that she hasn't put up Christmas decorations this year because they only gather dust before having to be taken down again!


For me, Christmas is a quiet, peaceful time spent with immediate family. This will be my eighth Christmas post-cancer and I'm grateful to have survived yet another year. It's another milestone reached.

Whatever Christmas means to you, whether you celebrate or not, have a safe and happy time this December.

Love Rose x



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Monday, 18 September 2017

Wise Up To Womb Cancer.

We're over halfway through Womb Cancer Awareness Month / Gynae Cancer Awareness Month and here's another reminder of symptoms to look out for that might be a sign of womb cancer:

© Action on Womb Cancer


Thanks to Action on Womb Cancer for sharing this poster. 


Love Rose x




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Friday, 25 August 2017

Signs and Symptoms of Womb Cancer.

As we move ever closer to Womb Cancer Awareness Month and Gynaecological Cancer Awareness Month in September, the most important message is to be aware of womb cancer all year round. 

Womb cancer is different from cervical cancer, ovarian cancer, vaginal cancer or vulval cancer. The following Action on Womb Cancer leaflet tells us what signs and symptoms to look out for to help diagnose possible womb cancer early:





If you have any symptoms you are unsure about please see your GP / medical practitioner.

Unlike cervical cancer, there is no official screening program for womb cancer, therefore, it is vital to be your own health advocate.

Love Rose x




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Sunday, 6 August 2017

Womb Cancer Awareness Month Starts September 1st.

Today's blog piece is from Debra, Founder of online advice and support service Womb Cancer Info, also Co-Founder of UK charity Action on Womb Cancer:


'September is - among other things - Womb Cancer Awareness Month. And it's approaching fast.


Womb cancer is uterine cancer is endometrial cancer. It's the most common gynaecological cancer, with around 9000 women in the UK diagnosed each year and roughly twice as many deaths as from cervical cancer - so around 2000 annually - therefore it pays to be aware of womb cancer all year round and not just for September.

When diagnosed early, womb cancer has a good prognosis. The most common form is endometrial adenocarcinoma which tends to present with abnormal vaginal bleeding. This can be anything from occasional spotting to unusually heavy bleeding, so it's important to take notice of changes and - most important of all - to act on those changes by seeing your GP about them. Be your own health advocate. It's your body, you know it best! 

And share. Yes, share!


Womb cancer isn't widely known about or talked about, and nor is it screened for. Only by letting women know this cancer exists, and by raising awareness of potential signs and symptoms, can we help push for early diagnosis and a good outcome for as many women as possible.'



So remember to raise awareness of womb cancer whenever and wherever you can to help save women's lives.

Love Rose x




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Sunday, 25 June 2017

Kieran Maxwell's Legacy

Back in 2012 I wrote about Kieran Maxwell who had been diagnosed with Ewing's Sarcoma in 2010. Sadly, Kieran died on Friday 23rd June at the age of eighteen.

You can support ongoing fundraising for research into Ewing's sarcoma and all childhood cancers at:

http://www.cclg.org.uk/KieranMaxwellLegacy


My sincerest condolences go to all of Kieran's family and friends.

Love Rose x



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Monday, 2 January 2017

Happy New Year!

I'm slightly late with my New Year wishes, but here's hoping 2017 is a good one for us all!

Love Rose x


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Saturday, 20 February 2016

Joan's Ovarian Cancer Story.

Please read and share Joan's ovarian cancer story, as told to Margaret MacGillivray:

https://plus.google.com/104321932101001098641/posts/1FfVrLkbtYk

Love Rose x



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Gill's Womb Cancer Story.

Please read and share Gill's womb cancer story, as told to Margaret MacGillivray:

https://plus.google.com/104321932101001098641/posts/HKyHBJmLjzL

Love Rose x



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Debra's Womb Cancer Story.

Please read and share Debra's womb cancer story, as told to Margaret MacGillivray:

https://plus.google.com/104321932101001098641/posts/XxdWuUietzM

Love Rose x



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Linda's Womb Cancer Story.

Please read and share Linda's womb cancer story, as told to Margaret MacGillivray:

https://plus.google.com/104321932101001098641/posts/PyRyvvxXp6M

Love Rose x



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Jenny's Womb Cancer Story.

Please read and share Jenny's womb cancer story, as told to Margaret MacGillivray:

https://plus.google.com/104321932101001098641/posts/EjUjmp9ws9z

Love Rose x



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Margaret's Womb Cancer Story.

Please read and share Margaret's womb cancer story, as told to Margaret MacGillivray:

https://plus.google.com/104321932101001098641/posts/4e7w9YvsUJh

Love Rose x



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Jo's Womb Cancer Story.

Please read and share Jo's womb cancer story, as told to Margaret MacGillivray:

https://plus.google.com/104321932101001098641/posts/YvQH8qWCR1c 

Love Rose x



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Friday, 1 January 2016

2016 Is Here!

Happy New Year everyone!

Love Rose x



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